Take a peek at the World's 1st "3T Pediatric Tesla MRI" just days after it was installed at Alberta Children's Hospital (and before the magnets went live, lol)!!
Thanks Trish, Justine & all the great people who chose us for the MRI photoshoot to launch this amazing machine! ~ May 2012
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Website UpdateSo it has been a a busy year to say the least! So busy that in fact I have not had time to work on this site in terms of adding products, supplements and store listings, HOWEVER, I am in the midst of several huge changes and once those calm down, I will eagerly be updating the site's resources again!
I am beyond thrilled and proud to say that Sophie is officially OFF the Ketogenic Diet treatment and is seizure free from June 19, 2011 til now! Yes,...SEIZURE FREE! I cannot say enough about this treatment and am happy to talk any new parent's through it or into it. I will share any resources, recipes and tips I have (like do NOT buy a kitchen scale that weights to 1/10th of a gram, buy a jeweller's scale - they are 100 times cheaper!) Email me at keto.kid7@gmail.com for any support I can offer. Keep adding your recipes under the various ratios for other parents to use, our faves are there, Keto Apple Crumble, Ta-Da! Chocolate Cake and others.... Send us photos, comments, recipes...anything you want! Since we started our journey, we discovered a product called an Emfit Monitor. This is must-have item for any child who is at risk for status or cluster seizures, especially night seizures. I know I personally could not sleep for the first 4 months of our journey; when I found this bed monitor that would alert me if she seized or stopped breathing; my world changed. I have since started a petition to encourage either provincial, federal or private health care programs to cover the cost of this life saving device (as they cost $650 USD) and are cost prohibitive for many families. Please sign and support our cause as we get closer to 1,000 signatures! PS- Big love to my Keto Mentor, Paulette who, with twin girls on the Keto treatment, saw seizure control success with one daughter, and sadly not the other. In fact one daughter has seen her seizures evolve and worsen. Much love from Sophie & I to you Paulette, D, L & C.... xoxoxoxo ~always thinking of you guys.. girls date soon I hope! Click here to submit! |
About Us...Our journey with epilepsy and ultimately the Ketogenic Diet started on March 17, 2010 when my daughter, then 6 years old at the time, slid to the floor under her desk at school into her first tonic/clonic (grand mal) seizure.
Within one week,, she progressed to clustered seizures and had her first 911 seizure that left her fully seizing for almost 6 minutes straight, she had turned blue and was no longer breathing. After a week in hospital and 4 failed medications that left her having between 70-100 absense, myoclonic and complex types of seizures a day; I knew that her medication induced depression, rages and severely altered personality were only going to get worse unless we changed gears. I had done all the ketogenic research and and had a frank discussion with her Neurologist, and thankfully, he agreed that she was a prime candidate for the Ketogenic Diet treatment. We started planning. Was I scared? You bet! Terrified is a better description. But I knew I could not stand by and watch as my daughter's personality and sparkle deteriorated any further. We started practicing swallowing pills with tictacs, bought our blood testing and urine testing kits and started to create some stellar Mac spreadsheets for our daily test results and food tracking. Feel free to download it as it gives you your daily ketone/glucose averages, converted to line graphs to monitor spikes and dips, weight tracking, seizure counts and our reward system. (Did I forget to mention I am a serial business entrepreneur and business woman who LOVES technology?) I tracked her weekly weight check, 4 x a day ketone/glucose blood tests, 4 x a day urine tests, seizure counts and we used the form for a sticker/reward program too. Every blood/test/urine test earned a sticker and every pill swallowed, earned a sticker. At the end of the week, we added up our sticker totals and traded them in for a dime each. Every Sunday, I would send off the electronic copy to our dietician and Neurologist Clinic at Alberta Children's Hospital for their records and Sophie would fill her piggy bank! |
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After my light bulb moment and after talking to numerous other Keto Parents, it dawned on me that this treatment was lacking in resources for the actual products and items needed for these kids. I was instantly determined to take my experience as a 16 year, award winning retailer and turn it into something positive for every other family on this same journey. A website with not only products and supplements, but tips, tricks and bonding opportunities with other parents looking for help, encouragement and support from this tightly knit community.
So I researched and sourced out all the vitamins, minerals and supplements we needed for the treatment. As well as new sweeteners like Stevia, Xylitol and Agave Nectar. The first thing I realized was how DIFFICULT it was to find all these items! Between visiting 5 different health food stores and ordering online; it became a new part-time job! On this treatment, the kids can no longer eat store bought anything really, no flours, no cookies, nothing with sugar, no pasta,etc.. I can tell you that the day I created "Keto Banana Bread" and "Ta-Da! Chocolate Cake" for my daughter, I became a super-hero in her eyes! No cape or spandex required! Just ingenuity, determination, almond meal & coconut flour!
So here we are 3 months into our POST treatment calendar and we remain seizure FREE since June 19, 2011!! HUGE milestone and relief! I now feel that I actually have something to share with other parents who are terrified and entering this arena! Alternatively, now, I want YOU to share YOUR experiences with all the other parents who are sliding in just a few steps behind you. Think of the parents who are worried, confused and scared to start this treatment....remember to share the keto love with them too. I know my journey was helped by having the support of another Keto parent. (Here is where I insert a smooch and hug to MY keto mentor, Paulette. xoxo Thanks for being a bubbly ray of sunshine in my keto world when we started! You made it all seem easy even though I was petrified! You made those first few steps so much easier!)
At the end of our busy day, there are 2 organizations we believe strongly in at our house. The fabulous, Alberta Children's Hospital Foundation, and local chapter of The Epilepsy Association. Please feel free to make donations to those establishments directly or through our links here.
Welcome to our new community!
~Leah & Sophie
Updated May 2013
PS- We are 20 months seizure free and counting!! :0)
So I researched and sourced out all the vitamins, minerals and supplements we needed for the treatment. As well as new sweeteners like Stevia, Xylitol and Agave Nectar. The first thing I realized was how DIFFICULT it was to find all these items! Between visiting 5 different health food stores and ordering online; it became a new part-time job! On this treatment, the kids can no longer eat store bought anything really, no flours, no cookies, nothing with sugar, no pasta,etc.. I can tell you that the day I created "Keto Banana Bread" and "Ta-Da! Chocolate Cake" for my daughter, I became a super-hero in her eyes! No cape or spandex required! Just ingenuity, determination, almond meal & coconut flour!
So here we are 3 months into our POST treatment calendar and we remain seizure FREE since June 19, 2011!! HUGE milestone and relief! I now feel that I actually have something to share with other parents who are terrified and entering this arena! Alternatively, now, I want YOU to share YOUR experiences with all the other parents who are sliding in just a few steps behind you. Think of the parents who are worried, confused and scared to start this treatment....remember to share the keto love with them too. I know my journey was helped by having the support of another Keto parent. (Here is where I insert a smooch and hug to MY keto mentor, Paulette. xoxo Thanks for being a bubbly ray of sunshine in my keto world when we started! You made it all seem easy even though I was petrified! You made those first few steps so much easier!)
At the end of our busy day, there are 2 organizations we believe strongly in at our house. The fabulous, Alberta Children's Hospital Foundation, and local chapter of The Epilepsy Association. Please feel free to make donations to those establishments directly or through our links here.
Welcome to our new community!
~Leah & Sophie
Updated May 2013
PS- We are 20 months seizure free and counting!! :0)
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